Jennifer Brea, a Harvard Ph.D. student, was signing a check one day at a restaurant when she found herself unable to write her own name. Just months before she was about to marry the love of her life, she became progressively more ill, losing the ability to even sit in a wheelchair. When doctors told her it was “all in her head,” Jennifer decided to grab a camera and film the darkest moments unfolding before her eyes. She turned the lens on both herself and her community, a hidden world of millions confined to their homes or bedrooms by ME, commonly called chronic fatigue syndrome.
Myalgic Encephalomyelitis (ME) is a systemic neuroimmune condition characterized by a severe worsening of symptoms after even minimal exertion. The condition leaves 25% of patients house or bedbound. In this film, Jennifer, as the filmmaker, becomes an activist for those who can’t do it themselves. By interviewing patients with ME around the world via the internet she shines a much needed light on the wide ranging symptoms and calls for a better understanding of this disease that is so much more than just fatigue.